Monday, September 13, 2010
Transitioning to College blog
By Guest Blogger Jean Ashmore, President, Association on Higher Education and Disability (AHEAD)
It’s the time of year again when yellow school buses are on the roads, uniforms and school supplies are everywhere, and students and parents alike are excited and anxious about a new school year. Those years when a student switches schools are particularly salient, with much to be learned and encountered in the new school. This is especially true when a young person transitions to college. All college students bring along academic and social experiences and lots of expectations and concerns – none more, in my thinking, than students with disabilities. Let me share some particulars on why college transition may be extra challenging for students with disabilities and give some suggestions to help make this time a success.
One of the greatest factors impacting a move from high school to college for students, who have received special education services during K-12, is that the laws regarding disability assistance differ substantially between primary and secondary educational systems. In providing resources and services for students with disabilities, colleges are guided by Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Act (ADA), both of which focus on non-discrimination and rights of access.
On the other hand, special education in public schools follows the provisions of the Individuals with Disabilities Education Act (IDEA), which mandates what is to be done for students identified with disabilities that adversely impact their education. These differences can result in a student with a disability being disappointed and frustrated in college. At the college level, course requirements are not modified as they sometimes are in high school, homework isn’t reduced, tests are not routinely modified and for the most part, professors aren’t notified by the college about a student’s accommodation needs before classes begin. Note, I use the word “accommodations,” not modifications.
In college, accommodations are not modifications. Accommodations aid a student in accessing courses and tests, dormitory living, etc., but success is up to the student. That might sound harsh, but when you really think about it, it’s wonderful. This means in college, a student with a disability does the same work as his or her peers, earns grades of the same value, establishes himself or herself as a student heading to a good future rather than a person defined by a disability.
Because a disability may result in functional limitations for a student, the college will provide reasonable accommodations to reduce the impact of those limitations. Let’s say a person has a disability resulting in the inability to read print efficiently. Working with the student, the college’s disability resource office will explore what the student needs, such as large print, Braille, electronic texts etc. and then will work on providing those accommodations. Notice that the reading material and tests will be the same but the means the student uses to access them may be different. This is not Special Education under IDEA, rather this is at the heart of the Americans with Disabilities Act (ADA) as recently amended – providing access so a person with a disability can learn, work and live a full and productive life.
So if the laws governing college are based on non-discrimination and the provision of access through reasonable accommodations, and the laws covering K-12 Special Education are quite different and provide for things not covered by colleges, such as school buses, personal care attendants and modified curriculums, what’s a transitioning student with a disability to do?
First of all, educate yourself about how the differences between high school and college will impact you. Understand your disability and learn to self advocate. If you’re not sure about how to be a self advocate, talk to your parents and teachers. Practice giving a brief “info bite” with people you know to develop confidence for when you need to discuss things like accommodations at your university. Don’t let others do this for you – remember the great saying, “not about us without us.” Being defined by your interests, personality and accomplishments rather than those “dis” things is where you want to be. I really hope you’ve chosen your college because of what it offers academically. It’s important to know about the college’s disability resources, but check those after you know that the school matches your interests.
College can be likened to a job with certain KSAs – knowledge, skills and abilities. Having the right KSAs will make college successful for all students, but especially those with disabilities.
K – knowledge of what disability resources and services are available at the college and how the system works, knowledge of what you need and why and knowledge of your goals.
S – skills with adaptive technology (exposure and training on AT should happen in high school), skills in talking with people about your needs and skills to follow a schedule you develop.
A – ability to work hard to do the academic work, ability to self-advocate and a very important ability, being independent as a college student regardless of the supports or accommodations that you may need.
Although many of these suggestions are geared toward a student who has a disability, I think these words can also be helpful to parents and others inquiring about higher education for students with disabilities. College is the gateway to good careers and lifestyle options that everyone aspires to, but I would venture to say that college is essential for individuals with disabilities, especially those with profound disabilities. Unfortunately, employment statistics of people with disabilities are woefully poor. While a college education will not guarantee solid employment, it definitely will help in that direction.
In my own experiences as a director at a university disability resource department, I’ve met some of the most incredible students. Future doctors, engineers, musicians, teachers, lawyers and so many other exciting careers. The challenges for an engineering student who is blind may seem overwhelming to others but to that student, it’s business as usual – ‘What’s the assignment?’; ‘How will I do it?’; ‘What do I need to get it done?’; ‘When am I going to do it considering everything I need to and want to do?’…voila! The work gets done and a well earned grade results. The student who reads books auditorily or who devotes lots of time to reading print just does that to get the job done. For these students, their learning strategies have incorporated functional elements linked to their disabilities. They do not define them – they are simply the methods these students use to achieve their goals.
There are some great resources about college transition for students with disabilities. The Department of Education‘s brochure, “Students with Disabilities Preparing for Postsecondary Education: Know Your Rights and Responsibilities” (http://www2.ed.gov/about/offices/list/ocr/transition.html) is a good place to start.
My professional association, AHEAD (www.ahead.org), has a number of helpful resources, too. Add a copy of 100 Things Every College Student with a Disability Ought to Know by Johnson and Hines to those KSAs, and the student will be well poised for success. I can’t recall if the 100 Things book recommends it, but I’ll end this post with “know how to do or get laundry done (without Mom)!” Here’s to a great school year for everyone.
Jean Ashmore is the President of the Association on Higher Education and Disability (AHEAD) and the former director of Disability Support Services at Rice University where she lectured in Education Certification. With backgrounds in rehabilitation and school counseling, Ashmore’s career has entailed working with people with disabilities in various settings.
Posted by Stephanie B on Sep 7, 2010 8:45:49 PM in Education, Guest Blogger
End of article/blog
Transition is one of my key interests in the work that I do. Transition is so important for students with disabilities, and in my opinion teachers, counselors, and parents are still not doing enough to prepare students for the changes they will face when leaving high school. I received very little transition assistance when I was leaving high school, so I now endeavor to assist students and parents during this important time in their lives.
librarianintx
Wednesday, August 18, 2010
Biloxi
Sunday, August 01, 2010
"Team Everest"
I watched this movie yesterday: "Team Everest: A Himalayan Journey." The documentary chronicles the adventure of a lifetime for a group of people with disabilities as they spend three weeks attempting to reach the base camp of Mount Everest. Five of the people in the expedition use wheelchairs.
Wow, what a movie. It is right up my alley. Its about perseverance, triumph of the human spirit, it has heart and humor, and it shows the beauty and culture of a faraway land that I will never have the opportunity to visit in my lifetime. I know that many people with disabilities do not like to be considered inspirational, but the people in this group are inspiring. They had a dream and were determined to see it come to fruition, and they didn't let anything stand in their way.
librarianintx gives the movie two thumbs up. :)
Friday, July 30, 2010
Fruit
Now I find myself experimenting a bit more with food, including fruit. I really like orange juice now. Last night I ate tuna salad with a small bowl of canned peaches on the side...and it was good! I really liked the combination of flavors, the saltiness of the tuna with the sweetness of the peaches.
Did I just sound like a judge on "Top Chef"? LOL
A silly thing to blog about? Perhaps. But I'm trying to be more consistent with my blogging. To share my thoughts and observations - about everything from politics to food, and stuff in between. :)
Not a very thought-provoking post, I agree. But did it make you hungry? :)
librarianintx
Monday, July 26, 2010
Writing
BloggersUnite had asked for bloggers and writers to make a commitment to blog on Saturday, July 24th. The goal was to raise awareness about persons with disabilities, two days before the twentieth anniversary of the Americans with Disabilities Act.
I received a message through Facebook, so I went to the BloggersUnite web site, and signed up to participate.
But I didn't blog that day.
And I didn't blog the next day either.
I am embarassed to say that I have not blogged since May 24th. Even though I endeavor to blog at least a few times per week.
I keep a handwritten journal as well. As much as I like computers, my first love will always be archiving my thoughts using pen and paper. It is the only craft I partake in, since I have no artisitic ability, no affinity for music, and my eyesight no longer allows me to do needlework. I do feel guilty that trees are dying to support my addiction, but I must admit that purchasing or receiving a new journal affords me quite an exceptional high. Obviously its not such a bad thing to be hooked on, but I often have to avoid the office and educational supplies section of stores like HEB or Target. Back to School displays are especially dangerous. And lets not even discuss the "fine art of writing" materials at Barnes and Noble. Ornate journals almost too lovely to write in, beautiful pens in assorted colors, have I mentioned the delicate stationery and decorated boxes of notecards in assorted designs?
....deep breath
But I have not written in my journal as much as I'd like to, either.
And why?
Two reasons mainly, one practical, and one emotional.
The practical reason is pure and simple: time.
I have been raised to always compare my life to others, and therefore find myself lacking, so I am a natural at the sport. An example: A friend of mine is raising four children. Yes, he has a partner. No, he does not have a disability. Yes, he has two months off in the summer because he works at a school. Anyway, he arises at some ridiculous hour (4 am? 5 am?) and works out a gym. He tends a garden in his backyard. He actually uses those vegetables in recipes he creates. He performs in local theatre productions, and devotes time to auditioning and rehearsing for aforementioned projects.
I only work half time. No husband, no children. I have a cat, but other than trying to trip me in her quest to reach the refrigerator before me, because I MUST be on a course there with the sole intention of feeding her, she does not ask too much of me otherwise. I just have to keep in mind that the bed is more hers than mine, and if I leave my shoes on the floor that is considered an invitation for her to chew on them. As are my bare feet when they're outside the covers at any time during the night. Since I am sleeping on HER bed, after all. She, Goldie Locks. Me, baby bear.
But instead of blogging or journaling, my weekdays are spent travelling to and from work using the city's paratransit service. Let me see if I can succinctly describe my daily commute. Okay, here we go: one word. LONG. Hours spent, usually in the backseat, of converted police cars. There are no headrests in the backseat of cop cars. Does the police department care about the comfort of alleged criminals? No, and apparently the city's paratransit service doesn't either. Every day I have an important decision to make: try to hold my head up, risking a sore neck and abdominal muscles, or choose to go for the lean and try not look like I've slipped into a coma. The car is much preferable to the paratransit bus, however. I compare those rides to something you'd expereience at a theme park, a carnival, or maybe a bucking bronco at a rodeo. As long as I hold on for dear life to the seat ahead of me and beg the driver to go slow over speed bumps and road humps, I can usually make it to my destination without wondering if I've damaged any vertebrae.
Once I get home, my afternoon and evenings (and some weekends) are usually spent taking care of the daily household duties that my personal care attendant has been hired to do. In the roughly five months that this particular person has been working for me, she has been to the emergency room, one of her five children has been to the emergency room, her other clients have had emergencies, her mother has had an emergency, she has been in more than one car accident, she has run out of gas multiple times...and it has been raining. Not like a tornado or something like that. Just...raining. Even when she does decide to grace me with her presence, she apparently has her clocks set to pacific instead of central time, since our meeting time is three o'clock and she usually arrives around five.
So often there isn't enough physical and mental energy left for writing after the chores are completed. Energy and hours in the day.
So those are the practical reasons for my lapses in writing. I have other excuses too, like the daily phone and web cam chats with my mother, and the barrage of television shows, movies, and music that my entertainment-addicted housemate lures me into. The newest is a BBC show about three roommates who appear human, but in reality they are a vampire, a wherewolf, and a ghost. Ok, I know, but its actually good! Although I guess I shouldn’t use the phrase “in reality.” Even reality shows aren’t real.
But I digress. Moving on to the emotional component. Back to the competition thing (refer to page _ , paragraph _ , section _ ) I'm not good enough. My writing isn't good enough. Why bother? What's the point?
When I think of other people writing, I envision a scene from a romance novel or movie. A beautiful girl with long, flowing hair, in a flowing skirt, sitting on a mountain watching the sun rise (or set, I'm not picky on that detail), a serene look on her face, gliding her pen smoothly over the paper as she writes for hours without pause. Contrast that to how I (and probably many other people) write: in fits and starts, either with wads of paper on the floor and pens thrown across the room, or banging on the keyboard in frustration, howling as I pace the room, and disentagling the strands of hair from my fingers that I've pulled from my head....
Mmmmm...if they ever need a female wherewolf character for that show, I should audition. Except they'd have to hire a voiceover to do the actual howling. Not enough lung capacity.
My journey from childhood where my disability was ignored to present day life as an openly physically-challenged individual continues to evolve. The reasons for the denial are numerous and complex. My father was also affected by the neuromuscular disorder, but was not diagnosed until I was. I was sixteen months old; he was thirty-two.
No one can say I was adopted. Well, my older and only sister tried the baby in a basket on the doorstep story, but I knew it wasn't true. I have always been the female version of my father. Same long, thin face. Same ears - huge. Same sense of humor. Similar limitations.
My father worked long hours managing a jewelry store. His job necessitated moving the family four times in less than ten years. He didn't like vegetables, avoided going to the doctor, and stood for hours each day on leg muscles that weren't strong enough.
In the last image I have of my father, he is sitting at the dining room table, weak and shaking. He has been ill for a few days. My mother hands him a glass of orange juice, but he can't hold it. The glass falls, but does not break, as some of the liquid spreads out on the chocolate-colored carpet. My sister and I are hurried out the front door and off to school. By the next afternoon he is dead of a massive heart attack.
He was forty one years old.
I was nine.
Was my father's death the reason that my mother couldn't even utter the name of my condition until I was in my middle teens, and the accompanying conditions of severe scoliosis and malformed jaws necessitated two major surgeries in the span of three months? Or did the ostrich-like behavior (head in the sand) begin with my father and was simply continued after his death? Was it guilt on the part of my parents, because they knew there was something physically wrong with my dad and they never attempted to investigate? Why did they turn a blind eye to a possible genetic disorder?
I probably will never have an answer to my questions. My grandparents and my father are gone, and my mother has a very difficult time speaking about such matters. She only told me about three years ago that her father died of melanoma. Which of course makes my sister, myself, and my mother at higher risk for the deadly form of cancer. Would have been a good idea to know this, and to take more precautions, such as preventing the significant sunburns I had as a child.
Many people with disabilities talk about the societal struggles they've faced, dealing with mainstreaming in school, lack of friends, social isolation, bullying, employment problems, etc. But my struggles have been more familial rather than societal. Sure, I got teased as a child. I was always the smallest student, I had short, kinky brown hair, and an overbite of Grand Canyon proportions. Dodgeball and Red Rover are nightmares I don't want to re-visit. I rode a bicycle with training wheels until I was in the fifth grade, when I finally gave up on the dream of one day having enough strength and balance to ride a two wheeler. I had guys in high school pretend to ask me out, then laugh themselves silly, believing that I thought they were serious.
I knew they weren't.
And yes, I have had society-based frustrations, transportation and attendant care being the major ones. But by far my greatest journey has been accepting myself as a person with a disability, and learning to overcome both the denial of my immediate family and the hopefully unintentionally insensitive comments expressed by my extended family. Questions like, "When are you going to get a real job?" when I had been employed for several years in the professional, albeit half-time librarian position that I still hold today. Or "You should eat a banana every day" - this uttered by the well-meaning, clueless uncle who has been convinced since I was sixteen years old that my uber thin frame is due to anorexia.
Its very difficult to write about family, to expose these hurts and tell these stories. It was hard the first time I had pains in my chest that resembled pleurisy and my mother told me I was just nervous. I was amazed that when my brother in law's recklessness caused my foot to be run over by my own wheelchair, a security guard saw me crying and came over to inquire as my brother in law, sister, and mother all stood there laughing. Isolated incidents? Unfortunately, no.
Does my family love me? Without a doubt, yes. Do they understand me - my needs, my desires, my viewpoints - no.
I just finished reading a book called Thicker Than Water; it is a collection of essays written by adult siblings of people with disabilities. I have no idea what my sister would say if she contributed a chapter. My sister doesn't communicate her feelings to me, about anything. I am pretty much invisible to her most of the time. It hasn't always been that way. We never shared a room, but there were summer nights growing up when I would sleep in her twin bed and we would giggle long into the night. I don't know what happened to us, and I'm not sure she would be able to articulate a reason for her distance. Its probably complicated, but that's as far as I'm willing to speculate. Somehow I remain hopeful that our relationship could improve. Its never too late.
I think a big part of my optimism stems from the three daughters she and my brother in law have raised. For all the turbulence and lack of care I have often faced in their presence, I have received nothing less than complete acceptance and love by their children. One day I was complaining about how terrible my teeth looked in a picture. My youngest niece said to me, "I like your teeth. They are a part of who you are."
She was twelve years old at the time.
I aspire to be as intelligent, resilient, and capable as they are.
I worry that anyone who reads this will view my words as a pity party. Poor me, look at what I've been through. I hope you can believe me when I say that I am grateful. Grateful for the people in my life, grateful for the life I've been able to carve for myself, grateful for the independence that I've been able to achieve. I have amazing role models. My BFF is a woman who has the same disability I do. She escaped a life of true familial neglect that nearly took her life. She moved halfway across the country on her own, has been employed full time for twenty years, and is happily married to her college sweetheart. She is one of the strongest and bravest people I know, and her example has helped shape my destiny.
Every day I endeavor to practice resiliency, experience happiness, learn, grow, DO.
librarianintx
Monday, May 24, 2010
Lost
And then came Lost.
I don't do scary. And I don't do gross. So the show almost lost me from the very beginning. But I was fascinated. I wanted to understand what was going on. I wanted to make sense of it all. I enjoyed being surprised every week, even though I don't usually enjoy surprises. I liked being confused, also rare for me.
I didn't always like it, though. I broke up with Lost as least twice that I can remember. I just got too frustrated with all the twists and turns. Too many questions and no answers. Too many new characters and new situations to keep up with. I gave up.
But I went back. I willingly got lost again.
At the heart of any show for me, sci fi or otherwise, is character development. You're going to hook me if you present me with characters that I can fall in love with, that I can care about, that make me want to tune in every week to see what happens to them. And Lost absolutely did that. Every character was so interesting, so compelling, so multi-dimensional. As one fan wrote, "There is a smoke monster in all of us." I don't necessarily like to believe that is true, but it probably is. Actually, I'd rather believe there is a Hurley in all of us.
Lost WAS about the smoke monster and the polar bears and the donkey wheel for me. But it was even more about Jack, Kate, Sawyer, Sayid, Hurley, Locke, Claire, Charlie, Aaron, Sun, Jin, Juliet, Desmond, Penny, Shannon, Boone, Rose, Bernard, Michael, Walt, Russo, Libby, Mr. Ecko, and the rest. And yes, it was even about Ben, Miles, Charlotte, Daniel, Charles Whitmore, and Eloise. It was about Jacob and the Man in Black. And of course it was about Vincent! Dare I say it was even about Nikki and Paolo? :)
I wish we knew the real name of the Man in Black.
Before anyone is amazed that I remembered all those names, I'll admit that I didn't. Even though in every episode they continually say each others names, I still had to look several of them up in wikipedia. :) And I still can't remember Ben's daughter's name. Arg!! Oh wait, its Alex. Yea! I remembered without having to look it up!
I have always said I'm not smart enough to be watching this show. I was confused all the time, including at the end. I don't know enough about mythology. I'm not a Christian. I was an English major for awhile in college, but I didn't get most of the literature references. But I kept watching. Because I wanted to understand it. And because I wanted to see what would happen next.
The way I coped with not understanding was to at least think I could try to remember everything that happened. So I started taking notes. I currently have notes for seasons one through four. I don't know if I'll go back and take notes on the last two seasons. I wonder if the story will become more clear if I do that.
So thank you Lost, for six seasons of incredibly smart, innovative, engrossing television. It was all worth the ride.
librarianintx
Saturday, May 22, 2010
Yea, wifi!
1) I've been busy
2) I tried a few times and couldn't figure it out.
3) Historically I can't figure things out on my own so I put off trying to do it.
Now before I get too excited, I d0 have to remind myself that:
1) The uverse installation man actually wrote out exactly what information I needed, but I overlooked it, and...
2) My wonderful computer friend gave me a big hint that helped me figure it out.
So I did not figure it out 100% on my own. But hey, 75% is still pretty exciting. I can count it as 75%, can't I?
Wifi rocks. I can now blog anywhere in the apartment. Well, I could do that anyway with my Blackberry. But typing is easier on a laptop than on a smartphone. I'm not the greatest typist on a laptop, but now I'll have more opportunities to practice. :)
It feels so good to figure something out by myself, at least mostly by myself. I was probably working on it for only about 20 minutes so far today. But when that webpage finally appeared after several failed attempts, I cried out, "Ahhh! Its working! I got it!"
Feels good to have something to cheer about today.
librarianintx
Tuesday, April 13, 2010
Technology and autism
When you enter Emily Buczek’s Toronto classroom, it’s like Times Square: Everywhere you look, there’s a new visual distraction.
A picture of each student is tacked onto a large, colourful map above his or her country of origin (Emily’s mug hovers over Poland).
There’s a shelf of well-loved toys – a slumped-over clown, a plush frog – and rows of picture books, among them Emily’s favourite: a cardboard volume of Winnie-the-Pooh stories.
All these diversions are there to keep up with students’ fleeting attention spans: Emily and her peers at Beverley School all have developmental and/or physical disabilities.
Emily, a profoundly autistic 13-year-old with an overgrown pixie cut and fingernails that have been cut or chewed to the quick, doesn’t fit the stereotype of an early adopter of the iPad.
But parents and educators of children with developmental disabilities – particularly autism spectrum disorders (ASD) – have celebrated its release. While the device was created mostly for media consumption, it has plenty of surprising uses for children with such disabilities.
Emily doesn’t have an iPad in her hands yet, but the learning curve won’t be very steep when it’s released in Canada at the end of the month – she’s already mastered the iPod Touch at school and at home.
It’s been a godsend, her mother Christina says. With an autistic child, even the simplest tasks can be emotionally and physically draining.
She recalls many days when Emily, who is mostly non-verbal, indicated she wanted to go shopping – but wouldn’t say where.
“I’d be driving her toward one store and pulling in and she’d be really upset because it wasn’t the one she wanted,” she says. “It’s wasting a lot of time, it’s a lot of frustration.”
But then she downloaded the iConverse app on Emily’s iPod Touch. One of many assisted communication programs available for people with disabilities, it allowed Ms. Buczek to load photos of her daughter’s favourite stores, set to audio recordings of their names. Now all Emily has to do is run the app and click on the button that corresponds with her choice.
While Apple has not yet revealed Canadian prices for the iPad (it starts at $500 in the U.S.), Ms. Buczek says a price tag of even several hundred dollars would be significantly cheaper (not to mention more portable) than some of the assisted communication devices currently on the market, which can cost more than $10,000.
Emily, like many kids with ASD, struggles with her fine motor skills, and a larger screen would help her navigate the apps with greater precision, Ms. Buczek says.
At Emily’s school, six teachers are using the iPod Touch with their developmentally-disabled students, as part of a University of Toronto study led by faculty of information professor Rhonda McEwen. Professor McEwen wants to see how it can help them communicate.
So far, their greatest use is easing anxiety among students, says Emily’s teacher, Ian Stuart.
The iPod Touch that he uses with his class has been outfitted with speakers.
“Touch the bee,” says a tinny female voice in one app. Displayed on the screen is a chocolate bunny, a bee and a shopping cart. Emily’s hooked index finger hovers over all three options before it presses down on the bee.
Mr. Stuart frequently uses apps like this to help Emily focus before she moves on to a new activity in class, since transitions can be very difficult for kids with ASD.
There’s a stack of deep blue one-inch binders in his classroom that are collecting dust. Before, whenever he’d head out with his students, he’d have to bring them along.
Inside each binder are pages of picture cards arranged in various sequences. A picture of a ball and swing followed by a computer means recess is followed by computer time.
Since Mr. Stuart has used the iPod Touch, he’s done away with the binders. All those sequences can be stored in apps on the device, which has become a magic wand of sorts.
“[When we transition], some won’t even look at me,” he says. “But then I’ll pull out the iPod and when they look at it and hear sounds it’s like an epiphany.”
Software developers who enjoyed success with accessibility apps for the iPhone and iPod Touchhave now focused their attention on the iPad.
The latest version of Proloquo2Go, the most popular AAC app in the iTunes store, was released at the start of the month to work on the iPad. As of Friday, it was ranked No. 34 overall in the United States among all 185,000-plus apps.
It can be used by people with disabilities – particularly non-verbal ones, many of whom have strong visual memories – to express their wants and needs.
“It’s just a game changer,” Samuel Sennott, co-creator of the app, says of the iPad. “It’s … [a] portable, table-top solution for people with physical impairments, people with visual impairments. You can see more on the screen.”
For Stacie Carroll, another teacher at Beverley School, there’s another perk to using these gadgets with students: “It’s the cool factor,” she says.
“This is their world. They pick up a cell [phone] and they know what to do with it.”
Whether they’re using an iDevice for scheduling, learning or easing anxiety, the key is that they blend in with other kids, she says.
She uses eight apps regularly with her students, including a few unusual ones. She shows off iSeismo, which graphs even the slightest movements. She’s used it teach her class – a rather fidgety bunch – how to sit still and control their body movements.
Both she and Mr. Stuart say they see great potential in their classrooms for the iPad and its larger interface.
“A camera on [the iPad] would make it nearly perfect,” Ms. Carroll says.
Anissa Hersh, a speech-language pathologist on the ASD team at the Hamilton-Wentworth District School Board in Hamilton, says she’s interested in seeing how the device might benefit the students she works with as well.
“You have a whole generation of adults now who were never taught independence,” Ms. Hersh says. “If you have this technology, and know how to use it, the idea is that down the road, [they] can use it in their work field.”
Alex Stephens’s five-year-old son Luc has ASD and is “completely infatuated with computers,” he says. He’s an expert with his father’s iPhone, which works as both an entertainment device and an educational tool.
Mr. Stephens can barely keep up with all the unanticipated expenses that come with his son’s disability: special vitamins, speech therapy and social therapy.
At the moment, an iPad is a luxury he can’t afford, he says. “But if I were convinced it would help Luc, I’d buy it in a heartbeat.”
End of article
Thursday, April 08, 2010
My "hair trigger" effect
Ultra-sensitive? Its in your brain.
By Elizabeth Landau
CNN.com Health Writer/Producer
If you are particularly sensitive to the world around you - whether it's music, caffeine, other people's emotions, you may have a personality trait called "sensory processing sensitivity."
People who are highly sensitive in this way tend to look and observe and process things deeply, as opposed to boldly going ahead, says Elaine Aron, professor of psychology at Stony Brook University, who helped pioneer research on the subject in the 1990s. Having vivid dreams and being aware of subtleties in your environment are also characteristic of this temperament, she said. Take this quiz to see if this fits you.
Now, Aron's group has shown evidence in the brain that these people are more detail-oriented. The study is published in the journal Social Cognitive and Affective Neuroscience.
Researchers used functional magnetic resonance imaging (fMRI) to look at the brains of 18 participants. They found that people with sensory processing sensitivity tended to have more brain activity in the high-order visual processing regions, and in the right cerebellum, when detecting minor details of photographs presented to them.
"They are better at noticing subtle details in their environments than people without the trait," said Jadzia Jagiellowicz, lead author and doctoral candidate in the department of psychology at Stony Brook University.
Sensory processing sensitivity has been associated with introversion, but only loosely - about 30 percent of highly sensitive people are extroverts, Aron said.
Highly sensitive people probably make good counselors and recruiters, said Jagiellowicz, because of their attention to detail. They are able to more deeply process details as well as emotions, which are good skills in these professions. Accounting, which requires taking in a lot of information at once, may also be a relevant field, she said.
But the study showed that highly sensitive people do not quickly take in these details; in fact, they spend more time looking at them, so a job that requires a quick assessment of minutiae may not be the best fit, she said.
End of article
My comments: This article confirms what I finally figured out a few months ago. I'm simply wired differently. Its not my fault and I don't think I can fix it, but I can work on my reactions to the stimuli.
I can't remember a time when I haven't been on a "hair trigger." I've always been super sensitive. You look at me wrong and I feel like crying (and often do). Loud noises freak me out. I have a severe weather phobia. I have never reacted well to change. I worry obsessively.
But I'm working on all of this. I'm not autistic, but I can understand how scary changes in routine are to someone with autism. I used to be a slave to routine. I'm endeavoring to be more spontaneous. I'm finding that change can be exciting. I'm learning to roll with life.
"In three words I can sum up everything I've learned about life. IT GOES ON."
Robert Frost
librarianintx
Wednesday, April 07, 2010
Glee cast on "Oprah"
Q: "For me it's refreshing to see someone who's not able-bodied, as it were, on TV. I'm curious about the reaction you've gotten from viewers in terms of your character [Artie]."
Kevin McHale (Artie): "I'll reference a story that happened last weekend. A woman came up to me and she was saying her 16-year-old son is in a wheelchair, and he became obsessed with the show. She's like, 'I started reading books after the 10th time [he watched] the pilot episode, because I was over it. ... Me being the mom, I couldn't figure out why he liked the show so much.' It was the first time that her 16-year-old son had seen somebody in a wheelchair, representing his people, on TV. He'd watch the show and be like: 'That's my boy. That's my boy.' That right there, that's what it's all about. We are all playing somebody that somebody can relate to, and it's great. I'm so honored and proud to play that part. And they do an incredible job writing it, and it's just fun to sit back and do what they say."
I am very proud to say I am a "Gleek." I have been a fan of the show since I saw the first commercial for it. I love everything about it...the humor, the fun, the singing, the dancing, the heart, and of course the message...that its okay to be different, that everyone is different in their own way, and when we celebrate our differences, we often find our commonalities. I think just about everyone who watches the show can find a character they relate to, and that's one reason why the show is beloved by people ages seven to seventy.
I think all the characters are great, I have a very healthy crush on Mr. Shu, but my favorites are Artie and Kurt. Even though I did not start using a mobility device until I was in college, and even then I didn't use it all the time, I still feel such a connection to Artie. I am so proud of the show every time I see Artie front and center in the choreography, moving around the stage like everyone else in the choir, including participating in partner dancing. I love the fact even though he's not considered one of the "hunks" of the show, he is arguably one of the strongest male singers in the cast, and receives more than his share of the solos. It is so important having a major character with a disability in such a popular show. Its important for people with disabilties to see someone they can relate to, and its important for able-bodied people to see a portrayal of a healthy, active, intelligent, creative, talented person with a disability. No, the actor who plays Artie does not have a disability, and yes, I wish the show would have hired an actor with a disability. But Kevin McHale does a terrific job.
The character of Kurt, played by the talented Chris Colfer, is another important character to have on this popular show. Kurt is a proud, strong, confident gay young man, and arguably the most popular student in the choir. He steals every scene he's in, whether it be with a wink, a snappy one liner, or his incredible voice. The scenes with his widowed father are groundbreaking, whether his father is fighting for his son to have the opportunity to sing the usually female solo in a performance, or Kurt is saying he needs to remove his designer sweater before he lends a hand at his dad's auto repair shop. Kurt even joined the football team for a short time as the kicker.
Its important for 16 year olds and 42 year olds, and everyone in between, with and without a disability, to see someone like Artie on their tv screens. And its important for 16 year olds and 42 year olds, and everyone in between, gay and straight, to see someone like Kurt on their tv screens.
None of these characters are stereotypical. They have been created and are portrayed week after week in the way that reminds me of the famous quote from the movie "The Breakfast Club": "But what we found out is that each one of us is a brain...and an athlete...and a basket case...a princess...and a criminal."
librarianintx
Thursday, March 25, 2010
Librarian 2.0 Step 11: The Wide World of Podcasting
I have some experience with podcasts. My roommate subscribes to several podcasts on I-tunes, and I have listened to the ones for the tv show "Lost." Some of them have been podcasts and some of them have been vidcasts. Also I recently listened to Resiliency Radio, a podcast developed by Rick Allen and Lauren Monroe, on BlogTalkRadio www.blogtalkradio.com.
Since I am more engaged by video than audio, I prefer vidcasts. But I like podcasts too. I don't know if I would ever make one, since I think no one should be subjected to my voice for long periods of time. :) But it might be fun to do it at least once, to show myself that I could learn how. Maybe eventually I'll embed a pod or vidcast in my blog. You never know. :)
librarianintx
Tuesday, March 23, 2010
Thicker Than Water
The author is writing an imaginary conversation between G-d, a guardian angel, and St. Michael:
[Yes, I'm Jewish and there are no saints in Judaism, but work with me here] :)
"G-d: Well, I have sent [name] just about as many signs as I could send - without showing up in person - to let her know that she needs to...
Guardian Angel: I've tried my best to whisper words of encouragement. And I have even whispered advice into her friends' ears so she could hear it from them. But she answers EVERY piece of advice with another fear, another 'what if..' She's wearing me out.
St. Michael: It is looking pretty hopeless, G-d. I can't even begin to penetrate the wall of fear she's built around herself to give her a shot of faith and courage. She has no idea I am even around!
G-d: We tried the easy way by laying the whole path out in front of her, and by bringing people into her life who could help her and lead the way. But she's not getting it! There's only one way to help her now. I am going to have to resort to...
G-d, St. Michael, and Guardian Angel in unison: The HARD WAY!"
And later in the essay:
"And during the year that was my chasm, I faced a thousand tiny fears I had saved up since I was three...
Fears about having enough money...
Fears about not being to care for...
[in the essay it was her brother. In my case it would be myself.]
Fears I had no family. I found that families are made from the heart, not from blood.
Fears that my fear would kill me. I am still here"
From the essay, "The Chasm," by Antoinette Errante
librarianintx
Librarian 2.0 Step 10: This Wiki World
PB Works looks pretty cool; I want to learn more about it. I had some trouble at first adding to the LD wiki, but then I got the hang of it. I even created a new section, although I don't think anyone else has added to it yet. Its a section on favorite tv shows. Surprising, right? :)
librarianintx
Friday, March 19, 2010
quote
Friday, March 12, 2010
Essay Excerpt
From the essay "Don't Apologize for Being a Brother," by Zachary Rossetti, from the anthology Thicker Than Water: Essays by Adult Siblings of People With Disabilities
Saturday, March 06, 2010
Notes from first Resiliency Radio Show
Resiliency Radio
Episode One
Make a choice to use your life experience to inspire.
Resiliency is a choice you have to make every day.
We all need a spark of inspiration.
“ability to weather life’s storms”
“endure, adapt, overcome”
Question: Resiliency for kids aged 6 - 10
Ideas: rhythm, breathing, visualization, and working together as a group
Question: Will Raven Drum release a drum circle on dvd?
Releasing an audio (drum rhythms) this year and video next year hopefully.
Drum rhythms can change, affect heart and brain rhythms.
Whole foods and nutritional supplements can assist resiliency.
Show #3 will be about chronic pain.
Question: How does financial comfort affect resliliency?
Creating resiliency is an inside job. Its your mindset, your perspective that makes the difference. Some people are born with a positive attitude; for others its more of an effort.
21 Ways to Build Resliency on the Raven Drum web site
www.ravendrumfoundation.org
Question: Can Raven Drum help with addiction?
Yes. The circles support everyone. Playing together makes you feel supported, you begin to identify with each other, no matter what your problem or situation is.
Sense of belonging and acceptance – drum circles
Drumming with intent
You can create your own drum circles, create your own rhythms. Families can do this as well as organizations, groups, etc.
Community feeling, bringing old and young people together.
Know and understand your path, what you’re meant to do in life, connect with your purpose, ask for guidance if you don’t know yet what your purpose is.
Question: Any advice for young musicians?
Play from your heart, listen to the greats, those that have inspired others, make the music your own
We’re all unique. Embrace your uniqueness.
21 Ways to Build Resiliency
www.ravendrumfoundation.org
Nourish positive relationships
Avoid isolation
Share your feelings
Be mindful
Don't believe everything you think
Accept the things you cannot change
Focus on forgiveness and gratitude
Have faith in something other than yourself
Make healthy choices
Be open to learning
Create your own sacred space
Be of service
Avoid trying to understand why
Be a part of community
Breathe and meditate
Listen to nature
Create calming rituals in your home
Avoid thinking of challenges as impossible to bear
Laugh deeply
Connect to your purpose in life every day
Be patient
Sunday, February 28, 2010
Hockey
Librarianintx
Update: That was quick! Canada won.
Saturday, February 27, 2010
Learning
librarianintx
Friday, February 26, 2010
Spectacular!
Her rival, Mao Asada, took the silver medal for Japan, and skated into the history books as well. She is the first woman ever to land THREE triple axles at the Olympics, one in the short program and two in the free skate. I don't think a woman has ever even landed one triple axle at the Olympics.
Our American ladies did very well, even though they didn't medal. Sixteen year old Mirai Nagasu skated an excellent routine to finish in fourth place, edging out Miki Ando from Japan. And Rachael Flatt also skated a great routine. She finished in seventh place because several of her jumps were downgraded due to boot placement when she landed.
Congratulations to all the ladies!
librarianintx
Thursday, February 25, 2010
Johnny Weir
Weir wants critics to think, not make apologies
VANCOUVER (AP) -- Johnny Weir
var hb4 = new HelpBalloon({dataURL: '/athletes/athlete=2368/library/_flyout.html'});
is looking for understanding, not an apology.
Broadcasters on French-language RDS who made derogatory comments about the American figure skater's masculinity need to consider the impact their words will have on others, particularly impressionable youngsters, Weir said Wednesday.
"I want them to think before they speak. I want them to think about not only the person they're talking about, but also other people like that person," he said. "What people as a majority need to do is think, and think about who they're affecting. ... I don't want, 50 years from now, more boys and girls to go through this same thing."
The Quebec Gay and Lesbian Council demanded a public apology from RDS after one commentator said Weir hurts figure skating's image and another said Weir should be made to take a gender test. The remarks were "outrageous" and "homophobic," CQGL said in a statement on its Web site.Mark Tewskbury, a gold medalist in swimming at the Barcelona Olympics, called the remarks "totally unacceptable."
"I think Johnny Weir adds a fantastic element to men's figure skating," Tewskbury said at a news conference at Whistler Pride House, a venue designed to support gay and lesbian athletes and coaches. "It doesn't send the message that you have to be Johnny or be like him. It shows that all kinds of people take up figure skating, and all kinds of people can be excellent at figure skating.
"I was actually quite shocked that that is still happening in 2010."Although Weir said he found the comments "offensive," he supports free speech and doesn't think the broadcasters should be punished. He also doesn't really care if people criticize him.
But he does worry that the broadcasters' comments and the attitudes they foster will hurt kids who are different and are trying to find their place in the world. Or cause parents of those children to be less supportive.
"I hope more kids can grow up like I did and more kids can feel the freedom to express themselves," he said. "Out of ugly, I think the most important thing in life is to make something beautiful."
Weir is one of skating's most oversized personalities, and he enjoys challenging convention. He was targeted by animal-rights activists after adding white fox fur to his free skate costume for last month's U.S. championships, and he once posed for a photo shoot in a skirt and stilettos.
But he repeatedly has avoided questions about his sexual orientation, and did so again Wednesday. People shouldn't be defined by labels, Weir said.
"I don't think the fact I'm a figure skater matters. I don't think who I sleep with matters. I don't think where I'm from matters. I want people to see me for who I am, not what I am," he said. "I don't feel there's anything that anybody has to be out and about about. I think you should be out about being yourself. You need to be out and really own who you are."
End of article
I put in red the quotes I liked the most. Johnny expresses himself so well, both on and off the ice. If only all of his talent was respected, and he could be who he is without being ridiculed. Every person deserves that. I'm glad he has very supportive family, friends, and fans.
librarianintx
Clay
RALEIGH, N.C. - More than a year after disclosing he is gay, Clay Aiken is speaking before a gay-rights event in his hometown.
Aiken will deliver a speech about gay rights this weekend at the Human Rights Campaign Carolinas gala in Raleigh, The News & Observer of Raleigh reported Wednesday. Actress Meredith Baxter, who recently said she is a lesbian, also will deliver a speech.
The 31-year-old Raleigh native, pop singer and 2003 "American Idol" runner-up said he wrote his own speech after remarks provided for him proved too political, including a slam aimed at former President George W. Bush.
"I don't feel like this is the place to be horribly politically charged and bash people and talk about the wrongs that have been done," he said. "My goal is to be hopeful, that it's time for everyone to have equal rights."
Aiken says his goal is to urge Americans to support equal rights for all. He says that means allowing homosexuals to marry and enjoy rights that heterosexual couples take for granted like inheritance and hospital visitation. Aiken said that goal may take decades.
"It's more important to me, as a parent, that my son have all the rights — if he's gay — than it is for me. I don't want to do anything today that's going to inhibit, or be a detriment to, his rights," he said.
Aiken's son, Parker, was conceived via in vitro fertilization and born in August 2008. Parker's mother is music producer Jaymes Foster.
Foster, who lives in California and Aiken, who lives in the Raleigh area, share custody.
Aiken said he would probably attend Saturday's event with his bodyguard and without family members or friends.
Some family members have handled news of Aiken's homosexuality better than others, he said.
"Some Southern families like to sweep things under the rug," he said. "We just don't talk about it."
End of article.
I think this is fine. I don't think you have to be political in the fight for equality. Actually, I think some people will listen more if you leave politics out of it. Obviously Clay will be speaking to an audience that is already on board with his cause. However, if his comments are made more public through his fanbase, I think keeping politics out of his speech might help him reach a wider, more diverse audience...one that would not be receptive to Republican bashing.
I do have to say, what a difference a few years can make. Clay spent so long trying to convince everyone he was straight, including mocking homosexuality on television shows and in his concerts, which never sat well with me. I am impressed that only a little more than a year after coming out, he is making a speech for the HRC. Good job Clay.
librarianintx
librarianintx
Wednesday, February 24, 2010
AWESOME!!
A very excited
librarianintx
Will it work?
From the sublime...
http://www.newsleader.com/article/20100222/NEWS01/2220318
State Delegate Bob Marshall of Manassas says disabled children are God's punishment to women who have aborted their first pregnancy.
He made that statement Thursday at a press conference to oppose state funding for Planned Parenthood.
"The number of children who are born subsequent to a first abortion with handicaps has increased dramatically. Why? Because when you abort the first born of any, nature takes its vengeance on the subsequent children," said Marshall, a Republican.
"In the Old Testament, the first born of every being, animal and man, was dedicated to the Lord. There's a special punishment Christians would suggest."
Marshall was among more than 20 people, mostly Christian pastors and clergy, who gathered for the press conference in the General Assembly Building.
They called on Virginia officials to eliminate state funding for Planned Parenthood because the organization provides abortions...
I'm not signing my name after this, even a screen name.
Quote
by Brian Skotko, M.D., M.P.P, from his essay, "Driving Forward," included in the book Thicker Than Water: Essays by Adult Siblings of People with Disabilities, edited by Don Mayer (Woodbine House, 2009, ISBN: 978-1-890627-91-1)
In a perfect world, all siblings who have brothers or sisters with disabilties would feel this way...and would be able to express themselves so beautifully.
librarianintx
Tuesday, February 23, 2010
Abilities Expo
This is a national exhibit of products and services for persons with disabilities and also features workshops. There are usually four exhibits a year throughout the country. The link is for the Houston show during the weekend of August 27th - 29th.
librarianintx
Monday, February 22, 2010
new tagging sites
www.reddit.com
from the site:
reddit is a source for what's new and popular online. vote on links that you like or dislike and help decide what's popular, or submit your own!
StumbleUpon
www.stumbleupon.com/
from the site:
StumbleUpon helps you discover and share great websites. As you click Stumble!, we deliver high-quality pages matched to your personal preferences. These pages have been explicitly recommended by your friends or one of 8 million+ other websurfers with interests similar to you. Rating these sites you like [with a thumbs up icon] automatically shares them with like-minded people – and helps you discover great sites your friends recommend.
librarianintx
Librarian 2.0 Step 9: Chat and Instant Messaging
This was a quick section for me to finish, because I have some experience with chatting. I have chatted using AIM and Yahoo! Messenger. I have chatted in a message board chat room. And I have chatted using Facebook and Facebook games. I have also chatted (texted) on my cell phone.
With the exception of the message board, everyone I have chatted with is someone I know personally, not through the computer. The message board was a fan site of a singer I like, and I consider the people I chatted with there to be safe. Otherwise I do not chat with people I don't know. Its just a personal decision. I think chatting with people you don't know in person can be done safely; I just choose not to do it.
Chatting can be a lot of fun! My nights of message board chatting were often quite hilarious. I also have a lot of fun texting on my phone with my nieces and two of my friends from Houston. Its immediate, and it helps you feel close to the people you're chatting with. One of my nieces doesn't like to talk on the phone, but she enjoys chatting. One of my friends is disabled and talking is often tiring for her; its easier for her to chat.
Also, sometimes you might want to call someone, but you're concerned that its too late or too early in the day. If you see them online through chat, you know they're awake and its okay to call.
These days many people no longer have land line phones, and they may be limited on their daytime cell phone minutes, so texting is a good alternative. My nieces chat so much that my sister has a family plan for their cell phones that features unlimited texting and a smaller number of talk minutes.
Chatting can be very beneficial for people with disabilities or health problems that prevent them from attending social activities. Night or day, there is always someone in a chat room somewhere who is ready to have a conversation. Chatting can be a social outlet, a place for advice, a source of comfort, an area to discuss common interests, a platform for debate...and in all of these situations, all parties involved need to consider personal safety issues when chatting with people they don't know offline.
I also have skype. Skype is great!! You can see and hear the person, just like you're in the same room with them. Skype can open up a whole new world for people, especially people with disabilities. Oprah uses skype. :) I'm sure many businesses use skype. It can cut down on the need for travel. There is even a chat function in skype, in case the audio is having problems, or for the transmission of links and other information.
I am a big fan of skype. The software is free. You only have to pay for the webcam, and some computers have a web cam already built in. Web cams can be used with both laptops and desktops, so you can skype with people from anywhere. I have a friend whose college-age daughter was in a long distance relationship for more than a year. She would take her laptop to the library, to Starbucks, to Panera, and have study/coffee/lunch "dates" with her boyfriend via skype. :)
librarianintx
Librarian 2.0 Step 7: Tagging, Folksonomies, and Social Bookmarking
Honestly, I'm still confused by delicious. It seems really cool, but it also seems confusing to me. It feels too unstructured. I like folders. I like compartmentalization. To have a list of random bookmarks seems unorganized to me. Maybe I just need to learn more about it. I like LibraryThing a lot, and I like the idea of patrons being able to add links and reviews and make the library experience more interactive. I enjoy creating guides and pathfinders, so the idea that tagging and bookmarking might make those documents obsolete doesn't sit well with me. But having information be timely, accessible, and easily updatable is important to me. So I'm keeping an open mind and I want to understand tagging better.
librarianintx
Friday, February 19, 2010
Olympics
Johnny Weir was ROBBED!
*deep breath*
Seriously. Two solid, beautiful programs. He landed every jump. He did two triple axles in his long program. Wonderful artistry. And he finished in SIXTH place, behind TWO skaters who both fell in their long programs. WTF?!
Sigh. I am happy for Evan Lysechek. He skated two fantastic programs. He deserved the gold medal. And in my opinion, Johnny deserved the bronze. He certainly didn't deserve sixth place.
Keep smiling, Johnny. You're fabulous!
librarianintx
Rick Allen
I didn't get a chance to listen last night (see my next post for the reason why) so I hope it will be available this weekend.
For more on Rick and his wife Lauren's foundation, visit http://www.ravendrumfoundation.org/
When I have some time, (this weekend?) I want to blog some thoughts about resiliency.
Update: I'm updating this post on 2/22 with a big "Duh!" The radio show hasn't happened yet. Its scheduled for THIS Thursday. However, I probably won't get to listen this Thursday either, again because of the Olympics. Its ruling my life! :) I bet it will be available to listen to after, though. Hopefully.
librarianintx
Amazing Race
A quote on the first episode made me laugh out loud. One of the teams was getting into a cab, and a guy said to the driver, "Drive it like you stole it, brother!" Probably not the best thing to say to a stranger in a foreign country, but I thought it was really funny.
librarianintx
Saturday, February 13, 2010
Kudos to Vancouver!
Way to go Canada!
I also really liked how highlighted and involved the indigenous people of Canada were in the ceremony.
librarianintx
Thursday, February 11, 2010
Quick thoughts on recent sci-fi shows
The finale was kind of "meh" for me...Seemed quite different from the other episodes, and if you didn't watch the never-aired part 1 that was only available on the Season 1 DVD, you would have been really confused. That being said, there were some standout moments for me. I was of course very happy that Pria and Anthony (Sierra and Victor) got their happy ending. I loved watching Adele evolve during the last few episodes into the caring human that deep down she always has been. Her scenes with Tofer were so gentle and motherly. And my darling, wonderful Tofer...I figured he would be the one to save the world, and that he would have to die to do it. Sigh. I loved wacky, brilliant, adorable Tofer. I also loved Anthony/Victor as the "Tofer doll." Man, he was GOOD! He had the manerisms, the voice tone and cadence, everything. Hilarious, and VERY impressive!
The episodes leading up the finale rocked my world! I so enjoyed all the twists and turns. I started watching soap operas at a very young age, and even though I enjoy them, I am almost always able to figure out the plot twists before they occurr. So its very exciting when any show can surprise me, and Dollhouse definitely did that.
"Caprica"
I'm still in mourning for BSG. I did not like most of the BSG finale, but that's for another blog. I like Caprica so far. Its very different from BSG, but there's enough of a BSG influence to hook me. Its intriguing. And Eric Stoltz is one of my fave actors. I'm sure I'll have more to say later. I still want to go back and re-watch all of BSG. In my spare time, along with the 25 shows I'm currently watching. (Okay, I just counted on my fingers. I may have missed a few, but I counted 20 right now. And five shows that have been on hiatus will be returning in March and April, so soon it will actually be 25.) Yikes. :)
"Lost"
I'm a Lostie. I have all the DVD sets. I'm so obsessive, I take notes on the episodes. Do I love the show? YES. Do I understand the show? Not a bit. Do I "get" all the literature/biblical/scientific references? Heck no. Does it keep me from enjoying the show? Uh..uh-uh. :)
All that being said, I do get frustrated sometimes. I have given up on the show in seasons past, but I came back. This season didn't kick in for me until we saw Claire at the end of this week's episode. I mean, I thought the premiere was good, but I wasn't happy to be introduced to yet MORE characters, more others, and all the toggling back and forth between the plane not crashing and what was happening on the island...
I'm sad that its almost over. I'm going to miss the ride. But I think there are some people out there that will need professional help when this show ends; that is how "into it" they are. This may sound weird, but I don't care that much about how it ends. I'm actually not watching for the resolution, for the answers. I'm interested in the characters, what happens to everyone. I don't have expectations for the finale, and I certainly don't have any theories as to what's going on and what it all means. I just enjoy being surprised every week, even though many times I say, "What the heck?!" (Actually, I usually say "WTF?!") :)
Its very interesting that I have become so involved in sci fi. I was never a sci fi kid growing up. I was a "Little House on the Prairie" girl. Seriously! I wasn't even into fantasy, and I'm still not. I have not seen a single "Harry Potter" movie or read any of the books. But I do like a lot of science fiction - BSG, Babylon 5, and Star Trek especially. Its all because of my friends, beginning in undergrad and continuing through graduate school. They got me hooked.
librarianintx
profile pic
If I'm going to be a blogger, I need to learn how to compose quickly and not be so perfectionistic (I deleted part of this sentence twice, trying to get it to sound the way I wanted it to.) Stop that! :) Think it, and type it, and let it be out there for anyone who chooses to read it. I'm realizing that I have a lot to say, and not enough time in the day for all I want to do, including blogging, so I need to learn to say it fast and be happy with whatever way it sounds.
That's a run-on sentence.
Who cares! Its a blog, not a research paper!
Is anything I have to say important...meaningful? Probably not. But I'm going to say it anyway.
librarianintx
Wednesday, February 10, 2010
Librarian 2.0 Step 4: RSS Feeds
Update: I've added a few more feeds, but they're not work related.
There is a reader application for Blackberrys, but its not free. Darn. I'd like to have that, but I'm not going to pay for it.
librarianintx
Thursday, January 28, 2010
Technology rocks!
SO cool! Its a pen that can translate what it writes into digital text that can be uploaded to a computer by a USB port. It can even upload audio! And to further the coolness factor...you can buy one at Target! No having to search for a specialty assistive technology company!
If I was still trying to be a writer, I would SO want one of these! I mean, it would still be great to have one, but since I'm a throwback who creates much more easily with pen and paper than composing on the keyboard, this pen would be a dream come true. Since my writing is confined to journaling, blogging, and posting these days, the pen isn't worth the high price for me.
Its still way cool though.
librarianintx
Social Media and People with Disabilities article
Social media opens social world to elderly, disabled
by David Morrison
Social media is developing into more than a pastime for the elderly and disabled. If implemented properly, it could become their social lifeline.
For some residents at Davis Health Care Center and Champions Assisted Living in Porters Neck, this is already the case.
Davis recently installed computer stations equipped with Skype, a free software that allows users to “call” and see anyone around the world using a Web cam.
Twenty-three people of varying abilities at both Davis and the adjacent Champions Assisted Living have full access to computers. Staff hope to improve this figure through the installation of wireless Internet in all rooms when they remodel the facility later this year.
One resident, Vel Evans, 90, uses this system to speak with her daughter Deb Evans as often as they can. Deb, who Skyped her mom from her home in Texas last week, called the program “reliable” and said, “Skype is fantastic for when my husband and I are teaching in China.”
Not everyone at Davis has the capabilities to use a standard system, but that hardly stops them from accessing the information superhighway.
Sixty-nine-year-old Edsel Odom suffered two simultaneous strokes on May 2, 2003. He now uses a wheelchair and clicks a mouse with his single functioning thumb. To type, he uses an infrared device mounted on a baseball cap.
Odom uses all types of social media, including Facebook, Twitter and MySpace, and blogs.
“Of all the tools available, I enjoy MySpace the most. You really get a chance to know people there as opposed to the glimpse you get from looking at Facebook,” he said.
Social media is about more than just family and friends for Odom.
“I want to share my message with the world!” he said.
Others, like Laura Still, a 49-year-old Davis resident, just want to have fun.
Still was involved in a serious car accident 16 years ago that left her with brain damage.
Within the past five years, her true technological abilities have surfaced. She uses a fully functioning Macintosh computer set up in her room to play games, draft e-mail and listen to her favorite tunes.
Her message to others with disabilities is, “Never give up!”
As more and more people with disabilities enter the social media arena, disability resources and organizations are having to stay one step ahead.
For example, information from the Web site Disability.Gov, which provides resources on topics such as traveling with a disability or how to apply for benefits, can now be found on Facebook as well as Twitter.
Bethaney Ferguson, a sociology instructor at Cape Fear Community College, emphasized the importance of awareness about these tools. Now more than ever as society transitions into the post-industrial technology era, people must find ways to remain connected, she said.
“Social media provides isolated individuals of any age group with a socializing outlet. It is not uncommon for the elderly in our society to feel as if they have lost their social voice, and the use of social media restores this voice, oftentimes from the comfort of one's home. The value in maintaining this voice for the elderly individual is undeniable.” Ferguson said.
A person's age and work status might be barriers to that technology, a UNCW professor said.
Eleanor Covan, professor of gerontology and sociology at the University of North Carolina Wilmington, said people become used to the technology with which they grow up.
“Once people leave the workforce, they tend not to learn new elements of technology, and that is one reason why the oldest old are not likely to be on Facebook,” Covan said.
“This is the population that prefers reading a newspaper, rather than an electronic news report, no matter who authored the article,” she said.
At Davis Health Care Center, Vel Evans and Edsel Odom are among the exceptions, joining the 38 percent of those 65 and older who use the Web, according to 2009 Internet trend data from the Pew Research Center.
Friday, January 01, 2010
Mind over matter
Saw this quote and is hopeful it will help me. I had to confront a huge, flying one in the apartment yesterday. Luckily he fell off the wall into a box and I got him outside.
But I'm still traumatized. Not exaggerating. I've had a severe roach phobia for about thirty years now. Its one of a few phobias I have. Last year I successfully killed a big, flying one in the apartment, and even though it was incredibly hard to do, I was hopeful that the experience had given me the courage to have some strength the next time I was faced with such a situation.
Didn't work. I had a panic attack. My heart pounded. My hands went numb. More than 24 hours later, I'm still nervous and jumpy.
But I do like that quote. I'm going to say it to myself when I feel scared. Because I love butterflies. Obviously.
librarianintx
Wednesday, December 30, 2009
Wednesday, December 02, 2009
Librarian 2.0 Step 3: Cloud Computing
The idea of cloud computing is both fantastic and concerning for me. I think it is fascinating that so many people are so trusting that their information is going to be kept private and secure. I think this concept goes hand in hand with the idea of anonymity on the Web. Some people feel they can say anything (and they do!) because they believe they are posting anonymously.
For me cloud computing is so exciting because its all about access. Knowing that I can access the information I want and need from any computer or smartphone is a very important invention. This means I don't have to try to carry a laptop with me, or pay for Wi-Fi. It means I don't have to carry papers back and forth from home to work, or clog up my email with partially completed documents. It means if I don't finish something at work, I can pick up where I left off at home, without having to configure my home PC. It also means the home PC is not cluttered with work documents that I then might forget to email back to work.
For me cloud computing means increased mobility, greater independence, ease of use, and a more efficient use of my time, all of which are extremely valuable to me. Knowing that I could possibly get into Google Docs from my smartphone, add information, then upload it to my blog, all while I'm sitting at the doctor's office, or waiting for a ride, or enduring a ride, is like a dream come true, and I'm not exaggerating. I am constantly searching for affordable and accessible options to make better use of the time wasted in transit.
Do I worry about privacy and security? Yes. Do I worry about lost information? Yes, and losing the information is actually more worrisome to me than the privacy and security issue, which isn't smart, I know. But the emphasis that I place on ease of access would overrule my security concerns the majority of the time. For me, the information I would place in cyberspace is not highly sensitive. I'm talking about general work information and journal/personal opinion type of posting. No government secrets or the recipe for Coca-Cola or anything. Yes, I worry about identity theft, but that can happen to anyone. A friend had their identity stolen when someone took mail out of their mailbox. And when it comes to losing information, that can also happen in or out of cyberspace. Papers can get thrown in the trash. Water leaks, flooding, or other kinds of damage can occur. So information isn't 100% safe anywhere, really.
Many aspects of life carry some amount of risk. I have a friend who uses a wheelchair. She now has an automatic lock in her and her husband's lift-equipped van that eliminates the need for her husband to physically tie down her wheelchair. She just rolls right in, and the device locks her wheelchair in place. For her it means greater independence. For her husband it means relief for his knees and back. For both of them it means saving some time. The downside is that in the event of an accident, the lock would disengage more readily than the conventional tie-downs would. For my friends, the ease and access of the locking device outweighs the risk that might occur in the event of an accident.
Life is about constant judgement decisions.
Something extra:
This link is actually not part of the 12 Steps of Web and Library 2.0, but I thought it was germane to the conversation about societal divisions in social networking:
http://www.cnn.com/2009/TECH/science/10/13/social.networking.class/index.html
Librarian 2.0 Step 2: Blogs: My Thoughts
http://www.tsl.state.tx.us/ld/12things/
We're learning about all kinds of emerging computer technologies, and getting hands-practice with tools such as Google docs and readers, facebook, youtube, podcasts, etc. I am really enjoying this training. I have a lot of thoughts, which I will now be transferring from my google doc account to here.
Here are my thoughts from Step 2:
Change for me has always been scary. I am learning to view change as more exciting and sometimes just a little scary.
The landscape is changing so fast; keeping up with the dynamic environment is a challenge. I've never been very interested in being a leader and I still don't consider myself leader material. But I find the prospect of librarians being at or at least near the forefront of this technological revolution fascinating and thrilling. I have always been worried in everything that I do that I won't be able to "keep up with" everyone else. i still worry about that. But I'm also excited to try. I don't have a scientific mind; I don't understand how things work in a mechanical sense. But I don't think I have to know that kind of information. I just need to know what's out there and the basics of how to use it. The challenge is and will continue to be the ability to stay abreast and informed of constantly evolving technology, updated versions, and new systems. In a way it feels a little disappointing, because when I find something new I like to use it and enjoy it for awhile. But in this environment, I think many items and systems will become outdated, out of fashion, or possibly even obsolete in a short amount of time.
Take "MySpace" for example. It was "the big thing" not too long ago, and now most people have moved on to Facebook, LinkedIn, and other social networking sites. Its not really "cool" to be on MySpace anymore.
Another example could be the cell phone industry. The more you can do with a cell phone these days, the more attractive it is in today's mobile, impatient, active society. We need information, we need it fast, and we want it all in one gadget if possible. For some, one type of phone fulfills those needs. For others, another type fits the bill. I would use brand names, but that would prove my point. A few months after I mention them, people who read this might say, "Oh, those aren't the most popular phones anymore." In today's society, people desire the "it" product, the item that everyone is talking about. If you have the best cell phone, the computer with the biggest hard drive, the newest car, the awesome new "toy," then you have status; people are interested in you.
This also plays into the problem of the digital divide; the "haves" vs the "have nots." I think this problem could potentially deepen over time. Even though efforts are being made to ensure that children have access to computers and technology in schools, they will not be provided items as adults. Luckily the prices for computers are much lower than they used to be, and many applications are available for free. But popular gadgets aren't usually low in price. Those who cannot afford technology usually, thought not always, are the least likely to be informed about technology. So the divide widens if you can't afford what's out there, you don't even know it exists, you don't know how it works, and you won't know when it gets upgraded or is replaced by something else. This is a much bigger problem than simply a question of social status and mobility, although those ideals are important too. I'm also thinking about access to information, which can be critical. More and more in my work, I'm noticing that organizations don't provide phone numbers for the public. If you need to contact a company or a non-profit, you have to send an email, or fill out a form on their website. Which is difficult to do if you don't have a computer. Yes, you could go to a public library and use the computer there. But you probably don't have an email address for them to contact you. Or a cell phone. Or the time or transportation to get to a public library, if you work two jobs and take the bus. For many in our society, the digital divide has potentially serious consequences.
As librarians, I think there is at least some work we can do to bridge the digital divide. Look at what we've done in our library. Seniors and people with disabilities are learning to download books from the Internet, sync the books to mobile devices, and burn them to disks. They are learning to use digital audiobook players, many of which are portable and offer additional features such as notetaking, file storage, and access to music. They are also becoming informed about assistive technology and sources for funding. All of which is making this segment of the population knowledgeable, employable, empowered, and in many cases more independent and mobile than they otherwise would be.
Monday, October 19, 2009
Helen Keller quote
Very nice quote. She was so amazing. One of my heroes. Wonderful sentiment, but sometimes hard to put into practice, unfortunately.
librarianintx
Marsh
Marsh
Originally uploaded by DMA68
Yea, I figured it out! Turned out it was easy (of course!) :) When you click on an image in your account, there are clickable buttons just above the image, and one of them says "blog this." Its the same way when you find an image on Flickr. For some reason I didn't see those buttons when I was trying to post over the weekend. Can't imagine how I missed them. But anyway, now I know, and its easy. So exciting when I figure something out on my own! :)
Against the Colors
Against the Colors
Originally uploaded by tropicaLiving
Okay, so this is how you add an image from Flickr. Yea! :) But I still haven't figured out how to post an image that I have put on Flickr to my blog. Maybe you can't do that. Maybe you have to post it from your computer. But what if you're not at home and don't have access to the images on your computer?
Still working on this.
Beautiful picture anyway. :)
Saturday, October 17, 2009
First image post!

Monday, August 03, 2009
Something else I strive for...
People might say I'm a resilient person, but I've never felt like I was. I'm striving for that now. Resilience. Resilience and balance.
I had it on Saturday. A long day, the longest car ride I've experienced in years, to be a support system for a friend. It was a day that ended a long week of stress and planning and concern. What a relief that the day went well, and the task was accomplished. I did what I set out to do, and I did it without an utterance of complaint or discomfort. Because there was none.
I was resilient on Saturday. And my friend had a big weight lifted from his shoulder. It was a very good day.
librarianintx
Friday, July 31, 2009
Lyrics
But they're not yours,
they are my own
But they're not yours,
they are my own...
I am never broken"
"Hands"
by Jewel
Thursday, July 30, 2009
At some point...
At some point, I'm going to figure it out.
librarianintx
Wednesday, July 29, 2009
A Brief History
But now I'm learning what a good feeling it is to do for myself, and to figure things out for myself. Its qute a high for me. I'm also learning that within good reason, its good for me to be active. Yes, I do need rest, but the more I use my muscles, again within reason, the better my physical and respiratory health will be. And its true, thanks to certain medications and other medical interventions, I am accomplishing more in a day than I ever thought possible. And that feels GREAT! But again, the problem is balance. How much, how often, for how long? And what activities should I focus on? What are some things that I'm doing that it would be healthier for me to give up and let someone else do? What are some daily activities that I can give up control over for my health?
Tuesday, July 28, 2009
Balance
I'm doing more than I've ever done before to achieve health. I have a big problem with procrasination, and rarely do everything that I'm supposed to in a day. Part of the problem, of course, is that I have too many things I need to do for health, and not enough energy and time in the day to get it all done. Breathing exercises, physical exercising, eating right, taking meds, routine hair, skin, and tooth care, etc. Plus keeping my environment and equipment clean...
Although I'm doing quite a bit in the physical health realm, I'm not faring as well in the emotional health area. All the orange juice, broccoli, cantaloupe, fish, and low fat milk are great, but the improved diet is counteracted by stress, frustration, the ongoing saga of my complicated interpersonal relationships. Every day I'm trying to balance the desire to engage in activities I enjoy with the responsibility of making myself available to the people in my life who need me. My body is almost constantly on a hair-trigger, waiting for some disaster to strike, big or small. I want to fix everyone's life, including my own.
I am not powerLESS to change this. I am powerFUL. But a part of me refuses to alter the status quo. It is that part that gets the pay-off, that feels a sense of accomplishment at the end of the day, the satisfaction that the mind and the body has done as much as they possibly could to keep everyone and everything, including myself, as happy and running as smoothly as possible. That part, however, doesn't feel what the rest of me feels...frustrated, overwhelmed, lacking, never enough. Not every day, luckily, but too often.
Balance is the constant brass ring.
librarianintx
Friday, November 07, 2008
YES WE DID
Slightly more than four years ago, I watched Barack Obama make his keynote address at the DNC for John Kerry. I had not heard of him before. After his speech, I stood up in my housemate's bedroom, tears in my eyes and pride in my heart, and declared "That man's going to be president. And I cannot wait!"
Turns out I didn't have to wait that long.
What a great night. Tuesday helped to lessen the pain of eight years ago, the stress of Florida and hanging chads and the Supreme Court decision. Of course I wanted Barack to take Ohio and Pennsylvania and Indiana, but more than anything else, I wanted him to take Florida. Florida was ours eight years ago, then it was stripped away, and I wanted it back. As it turns out, we didn't need Florida, and we didn't find out we had it until after we learned we won the whole country. So I guess for some it was anti-climatic that we took Florida. I was still excited.
We thought it was going to be a late night. But at 10:10 pm Central Time, that magic announcement flashed on our television screen. CJ and I hugged each other and hollered and broke open a bottle of sparkling apple cider for a toast. The phone calling began. The celebrating commenced. I asked CJ how he felt, and he answered simply, "I can breathe again."
to be continued...
Tuesday, September 02, 2008
good description
Amy Elizabeth Alexander, Exceptional Parent magazine contributing editor
