Sunday, January 14, 2024

Winter Weather

Another winter storm is descending upon the Lone Star State. 

Other states are dealing with much harsher conditions than we are - below zero wind chills, piles of snow, blizzard conditions in some places. 

Compared to states like Illinois and Michigan, we are doing great. 

Except Texas has a shaky power grid. And many parts of the state don't prepare adequately for icy roads. Texans don't know how to drive on ice. They also can't stop themselves from panic buying food, bottled water, and toiletries. And our home and business pipes don't hold up well to long-lasting below-freezing temperatures. 

We are not a state known for cold weather. But in the past three years we have endured some dangerous freezes. Two years ago parts of Central Texas where I live were actually under a blizzard advisory! It sounds like an episode of 911 Lone Star. But it really happened. And people really died. Froze to death in their homes. Perished from carbon monoxide poisoning. Lost their lives because they were ventilator dependent or had other health conditions that were affected by electricity loss and/or extreme cold. We also lost members of our un-housed population.

So while some northerners might scoff at us, our fears of cold weather are justified. Especially those of us with disabilities and chronic health conditions. We are terrified of losing electricity. Of being trapped in our homes due to icy roadways. Of not having access to grocery stores or pharmacies. Some of us live alone and if our personal care attendants cannot get to us, then we are further stranded - no way to toilet, bathe, dress, or feed ourselves. The fear is real and can be overwhelming. 

So today I have much to be grateful for. So far I have electricity, heat, and water. I even got a warm shower this morning. I have food, medicine, warm clothes, blankets. I am fortunate. I will try to focus on what I have and not fear what might happen. The forecast is for below freezing temperatures until sometime on Wednesday. Hopefully the grid...and the pipes, hold out.

librarianintx


Saturday, January 13, 2024

Gratitude List 1/13/24

1) hot water for my shower
2) two pairs of warm socks
3) heat in the apartment 
4) making chocolate muffins for friends
5) meeting with online friends
6) visit from friends who brought me wonderful homemade soup
7) reading a good book

librarianintx

Thursday, January 11, 2024

My Experience with a Heart Catheterization

Sounds scary, but my experience on the whole went very smoothly. 

I am writing about it in hopes that if someone has to go through it, or knows someone who does, they will feel better knowing what to expect. 

I needed a heart catheterization because my yearly echocardiogram detected elevated pressure in my pulmonary artery. Pressure at 65 or above is considered high; I believe mine was at 45. Early detection and treatment are very important when it comes to pulmonary hypertension. Too many people are misdiagnosed which can lead to poorer outcomes. There are different types of pulmonary hypertension. The main symptoms are shortness of breath, fatigue, and a nagging cough. I wasn't having any symptoms. A heart catheterization is similar to an angioplasty. A small incision is made and a wire is guided to the heart. The procedure itself usually takes 30 minutes or less.

I arrived at the hospital shortly after 7 am; I was supposed to be there by 7:45. Even though I was early, I only had to sit in the waiting room for a few minutes. I was weighed and then shown to a small room that had a shared bathroom with an adjoining room. 

After I changed into a gown, a nurse took my vitals. My blood pressure was a little high, but my pulse and oxygen levels were normal. Of course it was very cold in the room. I was given a pair of warm socks and I asked for warm blankets twice.

Another nurse went over my medication list and asked a series of questions. He then drew labs and inserted an IV. I told him he had bragging rights for the rest of the day - He got in on the first try, which is rare for me, especially since I couldn't eat or drink after midnight. 

My wonderful friend Kathleen arrived around 9 am, and we chatted until it was time for me to go to the procedure room. I was visited by the intern who works with the cardiologist. He explained the procedure and answered my questions, which mainly pertained to how I would feel after the procedure and any restrictions for the rest of the day and the day after. I didn't tell him that I likely had clothes older than him. :)

One unknown about the procedure was whether or not I would need to use my bipap. My cardiologist, who is not the same the doctor who performed the procedure, said I would not need it. But versed is the sedation medication, and it can affect the respiratory system. I was then visited by the cardiologist. We decided I should use my bipap. She had me put it on to make sure the strap would not interfere. A heart catheterization can be done through the neck, the wrist, or the groin. Recovery is faster going in through the neck. 

They were running late, which was to be expected. I didn't stress about it, but I was getting very hungry and thirsty. My procedure was supposed to be at 10:15. They took me downstairs around 11:30. 

All of the staff was so nice and helpful. I was joking with the nurse as he wheeled my bed down the corridors and on the elevator. Because of my muscular dystrophy, I needed a lot of assistance in the procedure room. I had to be transferred to the table because I could not move myself. I could not lift my head to put on the surgical cap. And I could not put the bipap on for myself. All of the nurses were happy to help, and they told me everything they were doing as they did it: attached the blood pressure cuff, applied electrodes, draped my neck. I had to turn my head all the way to the left. I was a little concerned that would make my bipap mask leak, but it didn't. The procedure room was even colder; they layered me in warm blankets without me needing to ask. :)

Two important points when it comes to any surgery or procedure: Number one: Advocate for yourself. And number two: If you have allergies to medications or things like latex, make sure everyone is aware. I told the nurse upstairs when he asked about allergies, and I was wearing an armband that listed my drug allergies. But when I was outside the treatment room, I said to the nurse, "You know that I'm allergic to fentanyl, right?" I specifically mentioned that because I had read that fentanyl is often used for pain management during this procedure. She looked at me and said, "No." I said, "I bet you were going to give me fentanyl." She said, "Yup, we were." So after a quick discussion, it was decided they would just give me the versed. 

Its never easy lying on an operating table. But I stayed calm, knowing that the sedation was coming, and feeling secure in the belief that I was in good hands. I heard the nurse say "two of versed in". After that I remember a tiny sting, barely noticeable, when they made the incision in my neck. I don't really remember anything else until I felt pressure being applied to my neck after the procedure. I felt very relaxed, like I was just resting at home.

The nurse asked me if I was awake enough to have the bipap removed, and I nodded. I found out later that my blood pressure had dropped to 80/50 during the procedure, but it rebounded after I got in a room. I also remember someone telling me that the pulmonary pressure was normal! I was so happy. What that means exactly I still don't know. I will see my cardiologist next week, and determine where we go from here. But it's definitely great news for now. 

I remember being transferred back to the bed, but don't remember the trip back upstairs. Once I was in the post-procedure room, I felt mostly alert. My friend Kathleen joined me. I only had to stay for a little over an hour. They monitored me and I had a choice of food and drink. I drank some apple juice and ate a few graham crackers. I was able to dress myself. One piece of advice: don't wear a shirt with a tight neck like a turtleneck. :)

For the remainder of the day I was advised to limit my movement because I was a fall risk from the medication. I was told to move from the bathroom to the bed and not much else. Kathleen drove me home and warmed some soup for me. I also had prepared food in the fridge that I could grab and eat. I took a nap, but I was not as tired or weak as I expected. 

So in my experience, a heart catheterization was a surprisingly easy procedure. I barely felt anything during the procedure and the recovery has been very easy as well. If you or someone you know needs one, I hope reading my story will allay any fears. I also hope that anyone who needs one will receive the great care and assistance that I did. 

librarianintx

 


Monday, January 01, 2024

A Look Back at 2023

I'm not going to outline all the highs and lows of the year.

I'm not going to list my accomplishments or go into detail about the fun times I had.

I will simply say that 2023 started off rough. 

And then it got better.

I am grateful for the opportunities that came my way, and the gains I made in both my personal and work life.

I am hopeful for more good than bad in 2024. But if there is bad, then I will strive to face any obstacles with strength and resilience. 

Happy New Year 
librarianintx